Showing posts with label grief. Show all posts
Showing posts with label grief. Show all posts

Wednesday, April 28, 2010

Fingerprints! I Now Have Some!

It only took the fibbies 7 tries to read my fingerprints and it seems they have succeeded. At least I'm cleared to begin work. . . I'll double check to see if they were readable or if I was adjudicated out of hand again. At any rate, I'm cleared for take off!



I've painted the inside of the cargo trailer--for no other reason than it's prettier. Sheesh. It's just nicer to be shoveling junk in there. Even Madison Wolf, Hayden Bison, and Lamar Bear like it better than the unpainted version. I put the carpet back in, am gathering stuff like lawn chairs and some other goodies. Tomorrow after school, I'll have DD start bringing the boxes up from the basement.


I've put the sewing goodies under covers for the summer, which was hard to do after visiting the Sauder Village Quilt Show this morning. Holy cow, there was some drop dead incredible stuff. I might go crazy next year and enter something just to say I've entered something. One of my friends won a ribbon in the challenge division. I'll look into that, too.

DD and I pull up stakes in 11 days. It's crunch time, but the things that are left are the hardest. My office box is always out of control, as it is again this year. Packing my clothes will be easy as will DD's but FTD and DH need at least 3 more weeks of clothes here, but DH wants me to take his summer duds with me. That will be a good trick, since FTD doesn't have enough clothes to make that happen. DH does, but he always over packs clothes no matter what. And we need to decide what camping gear to take. We either take too much and don't use it, or none and wish we did. There's not much middle ground here.

Speaking of the boys, we had FTD's final IEP (Individualized Educational Plan) meeting with the Anthony Wayne Schools today. Thank God. It has been a brutal process. I've only heard of one family anywhere who has had smooth sailing through the whole deal. Only one. There's something very wrong with the system still. DD's is next week and that will be much nicer.

FTD will get to walk across the stage for his 'social graduation.' Had AW done their job properly, he'd have enough credits to actually graduate, but they figure kids with special needs don't belong in the AW building, so they don't bother. I've been harsh on the district before and now that we're nearly done with them, I'm not feeling anymore charitable towards them.

But the saddest part of the whole mess is that even after getting job training at the vocation HS for the next 2 years, my kids will probably only be employable in sheltered workshops. The job market totally sucks for able bodied, able minded people--what chance do my kids have?

Did I ever mention that grieving is an on-going part of being a parent of kids with special needs?

The up side is that we're hoping the boys can get seasonal employment in the hospitality industry where ever I work. Cross your fingers. And come on over and help pack the trailer!

Sunday, November 29, 2009

Autism and Alzheimer

A friend of mine wrote in his blog about how hard it is to visit with his Dad, who has Alzheimer's. (Birding with Kenn and Kim: Giving Thanks) . I have long, long maintained that when we find a cure for Autism, we will find a cure for Alzheimer's. Conversely, when we find a cure for Alzheimer's, we'll find a cure for Autism.

Living with folks with either sounds a lot alike. They forget who you are. They forget where they are. They say inappropriate things that they don't mean. They forget to eat. They eat too much. They sleep too much. They don't sleep enough. You know they want to express themselves because you can see it in their eyes. You can't tell what they want because they don't look at you anymore. They have receded into their own world and didn't take you with them. You rejoice for those tiny moments of cognizance--they are few and far between. It's hard to be with them. You grieve every day. Every single day.

So all you researchers out there: get cracking. Cure one or the other, I don't care which, but do it soon.